Sailing the Gulf Islands and Desolation Sound six years ago was the first time I experienced lupus symptoms. Since then I have learned how to adjust my life to accommodate her.
“When the body is rendered useless, the mind still runs like a bloodhound along well-worn trails of neutrons, tracking the echoing questions: the confused family of whys, whats, and whens and their impossibly distant kin how…It was all I could do to get through each moment, and each moment felt like an endless hour, yet days slipped silently past. Time unused and only endured still vanishes as if time itself is starving, and each day is swallowed whole, leaving no crumbs, no memory, no trace at all.”
This is from the beautiful book, The Sound Of A Wild Snail Eating by Elizabeth Tova Bailey. It has me remembering those days on the sailboat when I too observed a snail go about its day in the woods.
adventuring and playing is so vital to my life. living with lupus makes me appreciate the health I still hold, health I took for granted before. Never should we take for granted health and youth. They are so fleeting.